Over the past two months, we have received numerous phone calls, emails, and messages in response to the recent disparaging comments and harmful initiatives related to Autism that are coming from leaders at the federal level.
We want you to know that no matter where you are on the Autism journey, we see you, we hear you, and we support you. We share your concerns; we value your opinions, and we want you to know you are not alone. Every single person with Autism deserves respect, understanding and the support they need to live the life they choose.
Federal initiatives, such as the national Autism registry and the race to “find a cure”, along with the narratives that say Autism “destroys” families and that those with Autism “will never work, pay taxes, or have relationships” are dangerous, harmful, and rooted in fear and misinformation. Referring to Autism as a “chronic disease” or an “epidemic” relies on outdated language that dehumanizes Autistic individuals and perpetuates stigma and stereotypes, undermining decades of progress in disability rights.
People with Autism are our coworkers, bosses, parents, children, spouses, neighbors, teachers, and friends. They add value to our community and deserve to be treated with respect and dignity. The Autism Society of South Central Wisconsin stands in our commitment to advocate for and support those impacted by Autism. We will continue to emphasize the importance of scientific integrity and centering the voices of Autistic individuals in all policy decisions. We continue to advocate for more inclusive systems, such as strong Medicaid coverage and support for special education. And most importantly, we demand that the rights of individuals with Autism be protected.
The voices of Autistic individuals and their families need to be heard. No matter where you fall on the spectrum, your lived experiences are valued. To ensure informed and compassionate policymaking, as well as to enhance access to quality lifelong supports and services, it is essential that policymakers consider and incorporate your perspectives.
We know that this is a difficult time for many of those in the Autism community. We hear you when you say you are scared, not sure what you can do to make a difference, and wondering what will happen next. We don’t have all the answers, but we know that now more than ever it is important to support each other, to be good allies, and to check in on those you care about. Community is our strength, and together as a community, we will navigate whatever comes next.
In support and solidarity,
Kirsten Engel
Autism Society of South Central Wisconsin
Executive Director